4/22/2024 0 Comments What test to run for the scid![]() Most blood spot takers will access it digitally, but it can also be printed out locally. We’ve also produced a handy crib sheet to support conversations with carers or parents. The training resource helps health professionals to understand more about the condition and what information and support is available to parents who are offered SCID screening for their babies. e-learningīlood spot takers who offer SCID screening to parents and carers can now access the new SCID e-learning module. Health professionals making the offer of SCID screening to parents and carers can now access SCID screening resources to support the evaluation. ![]() This is because some of the 9 other conditions are time critical to detect, and need early treatment. Samples should not be delayed for SCID screening to start. Newborn blood spot samples should continue to be taken 5 days after the baby is born in accordance with national NBS sampling guidelines. Babies whose parents opt for it will definitely be tested for SCID from this date. This is why we’re asking blood spot sample takers to make sure that parents and carers are aware when taking consent from 27 August 2021.įrom Friday 3 September 2021, blood spot takers should include SCID in discussions with parents and carers in SCID screening areas. But inevitably some samples will be delayed in transit, which means they could arrive in the laboratory on, or after, the 6 September 2021 and therefore will be tested for SCID. Most will not because the sample will reach the laboratory before 6 September 2021. Parents in SCID screening areas need to be told that there is a slight chance that if their baby’s sample is taken from 27 August 2021 that it may be tested for SCID in addition to the other 9 NBS conditions. Start date for conversationsīlood spot takers will hopefully have the date of 6 September 2021 fixed in their minds as the start date when laboratories involved in the SCID screening evaluation will start testing samples for SCID. Crucially, it is about the dates these conversations need to begin. This article is written for blood spot takers to support them in offering parents and carers SCID screening as part of the evaluation. It will continue to run in a third year while the results are used to make a recommendation on whether or not it should be implemented nationally. The evaluation will initially run for 2 years, covering around two-thirds of the newborn population of England. Testing for SCID uses the same blood spot as the other 9 NBS conditions. The evaluation, due to launch on 6 September 2021, will help to determine whether screening for SCID works in practice as part of the NHS Newborn Blood Spot (NBS) Screening Programme. We published an article last week to launch parent and professional resources to support the evaluation of screening for severe combined immunodeficiency (SCID) in England. ![]()
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